Two Kinds of Grief
Grief
Over the last 22 years, I have noticed Hospice families deal with the loss of their loved one in a couple of ways.... more
Over the last 22 years, I have noticed Hospice families deal with the loss of their loved one in a couple of ways. There are those who mourn deeply their loss. And, there are those who grieve with hope. Both will lead you to the same place inside your being. Therefore, I do not want to imply that one way of grieving is better than the other.
As a loved one passes or is close to the end of their physical life, families begin to find themselves at a loss. The ability to talk to their loved one diminishes. The ability to take a walk with him or her falls away. The ability to share a meal, a memory, and countless other experiences fade into past memories. These past memories become alive inside those who can no longer create new experiences with their loved one who is dying.
This regression into one’s imagination and one’s heart reveals experiences that come alive inside one’s soul. Here, souls join one another on a journey that has no beginning or an end. This part of a relationship is eternal and sacred. They are the inspirational moments allowing a story to be formed and shared. As such, a sacred memory becomes a living presence inside those who have shared them.
I have noticed two kinds of grief in dealing with Hospice families dealing with the loss of their loved ones. One is mourning. The other is grieving with hope.
Mourning is a deep heartfelt experience of loss. This is a kind of grief that expresses itself in the body on an emotional level. The body may become flushed, weakened, very tearful, and much more.
It is good to allow space for deep seeded grief to express itself. This cleanses toxic emotions needing to express themselves through the body. As a person finds expression for their grief, a feeling of relief relaxes the body over a period of time.
Grieving with Hope is faith based. This usually means that a person believes he or she will meet their loved one in heaven again someday. This kind of hope can be comforting in the moment. Later, a person may feel his or her loss when their loved one doesn’t come home with them at their death.
Although a faith based grief has its strength, it does not make everything ok. There is still a feeling of loss on an emotional level. The heart knows something is different and nothing will be the same again.
Our bodies were created to express themselves “even” in grief. In Sacred Texts of many kinds, we find the encouragement to find “peace in the midst of despair” or “blessed are they who mourn for they shall be comforted.” Both of these statements reveal a connection to our faith in a higher being who will give us healing through the path of loss, and into, a sacred journey into the soul where our relationships are eternal.
This journey is taken through and inside the body. It is the journey into the same breath that gives us life and leads us home at the moment our body releases that breath in death. It is a sacred path leading us into who we really are.
Vilhauer, R.P. (2009). Perceived benefits of online support groups for women with metastatic breast cancer. Women & Health, 49(5): 381-404.
Contact vilhauerr@felician.edu for the manuscript.
Women with metastatic breast cancer (MBC), a life-threatening illness, stand to benefit a great deal from online... more Women with metastatic breast cancer (MBC), a life-threatening illness, stand to benefit a great deal from online support groups, but none have been studied specifically within this population. The present mixed-method study was carried out to determine which therapeutic factors occurred in online MBC support groups, and to see how such factors might have acted to benefit participants. Participants were 20 women with MBC who participated in online peer support groups. Most reported benefiting in some way from their groups. Six therapeutic factors theorized to be helpful in online support groups and cancer support groups were present in the groups studied: group cohesiveness, information exchange, universality, instillation of hope, catharsis, and altruism. However, although participants reported being able to discuss many other concerns freely, they had difficulty discussing death and dying, which are critical issues for this category of women with BC.
Vilhauer, R.P. (2008). A qualitative study of the experiences of women with metastatic breast cancer. Palliative and Supportive Care 6(3): 249-258.
Contact vilhauerr@felician.edu for the manuscript.
ABSTRACT
Objective: My objective was to investigate the experiences of women diagnosed with... more
ABSTRACT
Objective: My objective was to investigate the experiences of women diagnosed with metastatic breast cancer.
Method: I did a qualitative study based on interview data. Fourteen women with metastatic breast cancer were recruited into a larger study of online support group use. Participants were interviewed by phone.
Results: The women indicated that they experience distress because of concerns about body image, declines in aspects of their sexual lives, and worries about the effect of stress on their illness. The stress that worries these women comes from fear of dying, fear of disease progression and debilitation, the loss of their future, and practical concerns. The women were also likely to experience a decline in daily activity after being diagnosed with metastatic disease. They become less active because of the physical symptoms of the illness and the side effects of treatments, the medicalization of their lifestyle, their desire to avoid stressful situations, the constraints imposed by their social world, and the need to maintain disability benefits. Although women are often in need of emotional and material support from others after they are diagnosed, social support can decrease, both because women find it difficult to be open about the difficulties they face and because the responses of others are not adequately supportive. Distress and declines in daily activity and social support can feed into each other to create a vicious circle.
Significance of results: This paper makes a significant contribution to the literature by providing a rich description of how metastatic breast cancer affects women. Further research, with more diverse samples, is needed in this understudied area.
'Widening access to hospice care – a briefing paper for managers and trustees'
This is a practical guide on widening access to hospice and palliative care services, written in 2006 for Help the Hospices
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In Religion, 39(1), 22-33, 2009.
Pain may be seen as a problem to be healed or as a means for healing. The secular biomedical view of pain is that it... more Pain may be seen as a problem to be healed or as a means for healing. The secular biomedical view of pain is that it is to be avoided and alleviated; its only meaning is as a symptom of underlying disease. In contrast, there have been throughout history other views of suffering—as redemptive or as transformative, for example. This paper considers the disparity between these perspectives, examining the role of the emotions and the underlying neurobiological processes though which pain and suffering come to be experienced as meaningful, then analyzes interview material exploring how religion and religious beliefs help people cope with suffering or with pain. The experience of pain is subjective, enculturated experience; the meaning that pain or suffering holds within a given cultural context affects the experience of pain and suffering. In a context where pain and suffering are understood to be valuable, those experiences can be used for spiritual transformation and integrated within a meaningful identity. In contrast, in a context where pain and suffering are not understood to have value, that attitude can create more suffering, even in conditions meant to alleviate suffering, such as in biomedical situations.
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