E-Health

Knowledge Management and Electronic Health Record Facilitate Clinical Support to Improve Healthcare Quality

by Magdalena Karolak

Building a Knowledge Management System for the E-Health Knowledge Society

by Magdalena Karolak

Factors that promote or inhibit the implementation of e-health systems: an explanatory systematic review

by Frances Mair

Co-authored with: Carl May, Catherine O’Donnell, Tracy Finch, Frank Sullivan & Elizabeth Murray

Objective To systematically review the literature on the implementation of e-health to identify: (1) barriers and... more Objective To systematically review the literature on the implementation of e-health to identify: (1) barriers and facilitators to e-health implementation, and (2) outstanding gaps in research on the subject.
Methods MEDLINE, EMBASE, CINAHL, PSYCINFO and the Cochrane Library were searched for reviews published between 1 January 1995 and 17 March 2009. Studies had to be systematic reviews, narrative reviews, qualitative metasyntheses or meta-ethnographies of e-health implementation. Abstracts and papers were double screened and data were extracted on country of origin; e-health domain; publication date; aims and methods; databases searched; inclusion and exclusion criteria and number of papers included. Data were analysed qualitatively using normalization process theory as an explanatory coding framework.
Findings Inclusion criteria were met by 37 papers; 20 had been published between 1995 and 2007 and 17 between 2008 and 2009. Methodological quality was poor: 19 papers did not specify the inclusion and exclusion criteria and 13 did not indicate the precise number of articles screened. The use of normalization process theory as a conceptual framework revealed that relatively little attention was paid to: (1) work directed at making sense of e-health systems, specifying their purposes and benefits, establishing their value to users and planning their implementation; (2) factors promoting or inhibiting engagement and participation; (3) effects on roles and responsibilities; (4) risk management, and (5) ways in which implementation processes might be reconfigured by user-produced knowledge.
Conclusion The published literature focused on organizational issues, neglecting the wider social framework that must be considered when introducing new technologies.

HIV-positive youth's perspectives on the Internet and e-health

by Alex McClelland

Flicker S, Goldberg E, Read S, Veinot T, McClelland A, Saulnier P, Skinner H.

Emotions and Ethical Considerations of Women Undergoing IVF-Treatments

by Sofia Kaliarnta

Co-authored paper with Prof. dr. Sabine Roeser and Dr. Jessica Nihlén-Fahlquist.

Women who suffer from fertility issues often use in vitro fertilization (IVF) to realize their wish to have children.... more Women who suffer from fertility issues often use in vitro fertilization (IVF) to realize their wish to have children. However, IVF has its own set of strict administration rules that leave the women physically and emotionally exhausted. Feeling alienated and frustrated, many IVF users turn to internet IVF-centered forums to share their stories and to find information and support. Based on the observation of Dutch and Greek IVF forums and a selection of 109 questionnaires from Dutch and Greek IVF forum users, we investigate the reasons why users of IVF participate in online communities centered on IVF, their need for emotional expression and support, and how they experience and use the information and support they receive through their participation in the online community. We argue that the emotional concerns expressed in such forums should be taken into account by health care ethics committees for IVF-related matters in order to promote more patient-oriented care and support for women going through IVF. OO

Technology and Cultural (R)evolution: Can Telemedicine Give Power to the Patients?

by Tanja Ahlin

In medicine, technology may on the one hand support certain economic, and political structures, such as dependency of... more In medicine, technology may on the one hand support certain economic, and political structures, such as dependency of remote local health centers on large clinics in cities. On the other hand, telemedicine and e-health as tools of increasing the circulation of knowledge and information have the opposite effect on the level of the doctor-patient relationship. Thus, they can empower patients by democratizing knowledge that used to be exclusive to doctors, by forming strong social online networks and by enabling patients to be more involved in communication and decision making with regards to their health and treatment.

Telehealth in practice: using Normalisation Process Theory To Bridge The Translational Gap

by Frances Mair

Co-authored with Deborah Morrison.

Promoting participatory medicine with social media: new media applications on hospital websites that enhance health education and e-patients’ voice.

by Linda Gallant

http://bit.ly/vzJLZS

Background and Objective: The nature of health communication is changing as people increasingly seek health... more Background and Objective: The nature of health communication is changing as people increasingly seek health information on the internet. The objective of this study was to investigate how hospital websites utilize a variety of e-health tools; online communication technologies such as social media, video, podcasts, and interactive formats.

Methods: An inductive content analysis was performed on the websites of 14 top-ranked US hospitals from January 5, 2011 to February 28, 2011. A total of 1,330 web pages were analyzed to identify the types of online communication technologies utilized by hospitals to provide e-patients with health information.

Findings: The findings provided an exploratory look at how hospitals provide web-based health information to patients. All hospitals used social media platforms such as Facebook, Twitter, or YouTube. Most hospitals offered web-based broadcasting of health information. Online health tools such as body mass index (BMI) calculators and health dictionaries were also a common website feature. Less frequently employed were mobile applications, hospital-patient interaction tools and health blogs.

Implications: The convergence of interactive media formats with web-based communication tools will likely enhance e-patient education and promote patient involvement in ways that alter traditional health care interactions, and may lead to enhanced levels of participatory medicine.
http://bit.ly/vzJLZS

Impacts and Accessibility of Sticks

by Juho Salminen

Overview and Analysis of Electronic Health Record Standards

by Spyros Kitsiou

EVALUATION OF GREEK PUBLIC HOSPITAL WEBSITES

by Spyros Kitsiou

Adoption and Sophistication of Clinical Information Systems in Greek Public Hospitals: Results from a National Web-based Survey

by Spyros Kitsiou

Assessment of Ubiquitous Healthcare Information Systems Benefits

by Hamed Qahri Saremi

Communautés Virtuelles Et Gestion De L'Information En 2025

by Guillaume Narbonne

Journalism as Health Education: Media Coverage of a Nonbranded Pharma Web Site

by Avery Holton

Co-authored with Mike Mackert and Brad Love, University of Texas at Austin. Published in Telemedicine and e-Health, 2011.

Objective: As healthcare consumers increasingly use the Internet as a source for health information,... more Objective: As healthcare consumers increasingly use the Internet as a source for health information, direct-to-consumer (DTC) prescription drug advertising online merits additional attention. The purpose of this research was to investigate media coverage of the joint marketing program linking the movie Happy Feet and the nonbranded disease education Web site FluFacts—a resource from Tamiflu flu treatment manufacturer Roche Laboratories Inc.

Materials and Methods: Twenty-nine articles (n¼29) were found covering the Happy Feet–FluFacts marketing campaign. A coding guide was developed to assess elements of the articles, including those common in the sample and information that ideally would be included in these articles. Two coders independently coded the articles, achieving intercoder agreement of k¼0.98 before resolving disagreements
to arrive at a final dataset.

Results: The majority of articles reported that Roche operated FluFacts (51.7%) and mentioned the product Tamiflu (58.6%). Almost half (48.3%) reported FluFacts was an educational resource; yet, no articles mentioned other antiviral medications or nonmedical options for preventing the flu. More than a quarter of the articles (24.1%) provided a call to action—telling readers to visit FluFacts or providing a link for them to do so.

Conclusions: Findings suggest that journalists’ coverage
of this novel campaign—likely one of the goals of the campaign—helped spread the message of the Happy Feet–FluFacts
relationship, often omitting other useful health information. Additional research is needed to better understand online DTC campaigns and how consumers react to these campaigns and resulting media coverage and to inform.

E-Health and Digital Inclusion

by Wendy Moncur

Co-authored with Lorna Gibson & David Sloan, University of Dundee.
Chapter in forthcoming book "E-Health Communities and Online Self-Help Groups: Applications and Usage".
Please contact me if you would like more information on this publication.

E-health resources can deliver demonstrable benefits for quality of care, for example through provision of public... more E-health resources can deliver demonstrable benefits for quality of care, for example through provision of public health information and access to online communities and self-help groups for those experiencing ill-health. Digitally excluded groups of health consumers such as older people and those with disabilities have much to gain from the social connectedness and social support on offered through these digitally facilitated resources – yet at the same time are most vulnerable to continued exclusion due to inappropriate technology design and implementation.
In this chapter, we describe in detail the opportunities e-health can offer in the context of digital inclusion by reducing social exclusion and enhancing quality of life through thoughtful technology intervention.  We highlight the problems that may emerge or persist if e-health system design does not fully take into account the challenges of user access and adoption. We show how principles of user-centred and inclusive design can be used as a basis on which successful e-health systems can be developed and implemented, and offer suggestions for how these principles can best influence the design of future systems

Computerized clinical decision support systems for chronic disease management: A decision-maker-researcher partnership systematic review

by Pavel Roshanov

Co-authored with Shikha Misra, Hertzel C Gerstein, Amit X Garg, Rolf J Sebaldt, Jean A Mackay, Lorraine Weise-Kelly, Tamara Navarro, Nancy L Wilczynski, R Brian Haynes and CCDSS Systematic Review Team .

Can computerized clinical decision support systems improve practitioners' diagnostic test ordering behavior? A decision-maker-researcher partnership systematic review.

by Pavel Roshanov

Co-authored with John J You, Jasmine Dhaliwal, David Koff, Jean A Mackay, Lorraine Weise-Kelly, Tamara Navarro, Nancy L Wilczynski, R BRIAN Haynes, CCDSS Systematic Review Team .

NeedInn – behovsdriven produktutveckling inom E-hälsa

by Tobias Larsson

Larsson, Tobias ; Larsson, Madelene. Luleå : Luleå tekniska universitet, 2007. 60 p.

Denna rapport beskriver genomförandet och resultatet av EU-projektet NeedInn. NeedInn står för Needfinding och... more Denna rapport beskriver genomförandet och resultatet av EU-projektet NeedInn. NeedInn står för Needfinding och Innovation och det är inom dessa områden som projektet har tagit fram NeedInn- processen, ett arbetssätt med tillhörande metoder för hur du genomför behovsdriven produktutveckling inom e-hälsa. I rapporten framgår även problematiken som kan uppstå när behoven bakom olika lösningar inte tillgodoses på ett för användaren fungerande sätt och att det behövs en process för att fånga upp dessa behov redan från början så att fokus blir på rätt lösning.
Rapporten består av Inledning, och sedan beskrivning av projektets Syfte och Mål. Därefter följer det ett kapitel om hur projektets organisation har varit under projektets gång. Där framgår det även vilka aktiviteter som projektet haft som utgångspunkt samt vilken tidsplan vi arbetat efter.
Under kapitlet Fallstudierna redogörs det för samarbetet med de olika vårdaktörerna och varför det är viktigt med förankring innan ett sådant här projekt kan ta fart och få genomslagskraft. Det framgår även hur vi har gått tillväga för att sprida kunskap om projektet och hur vi arbetat med studentprojektet inom ramen för SIRIUS som är en avslutningskurs på LTU inom Kreativ produktutveckling. Vidare har vi under rubriken Samverkan samlat allt material om hur vi samarbetat med andra projekt, forskare, företag och relevanta verksamheter. Där framgår det även vilka konferenser och utbildningar vi deltagit på och hållit i och vad detta har gett projektet.
I kapitlet Projektresultat redogör denna rapport för de olika prototypprojekt som genomförts i projektet och där framgår det även vilket tillvägagångssätt och val av metoder som vi använt oss av. Förutom prototypprojekten så har vi under detta kapitel även redogjort för de olika publikationer som är kopplade till projektet och där finns forskningsartiklar, bokkapitel och examensrapport sammanfattade. Arbetet med NeedInn-processen och dess tillhörande IT-stöd är något som också framgår under denna del.
Slutligen avrundas denna rapport med en avslutande Diskussion där våra egna reflektioner och tankar kring projektet och dess resultat finns dokumenterade.

Field Observations of Therapists Conducting Virtual Reality Exposure Treatment for the Fear of Flying

by Willem-Paul Brinkman

Brinkman, W.-P., Sandio, G., and Van der Mast, C.A.P.G, "Field Observations of Therapists Conducting Virtual Reality Exposure Treatment for the Fear of Flying", Proceedings of ECCE2009, pp.169- 176, 2009.

Recent research suggests Virtual Reality Exposure Therapy (VRET) for the treatment of fear of flying as an important... more Recent research suggests Virtual Reality Exposure Therapy (VRET) for the treatment of fear of flying as an important reliable technique for this phobia. This paper focuses on the role of the therapist during an exposure session. Six therapists were observed in 14 sessions with 11 different patients. Results show that in 93% of the observed sessions, therapists started with a similar flight pattern. Furthermore, a total of 20 errors were observed where therapists initiated inappropriate sound recordings such as pilot or purser announcements. Findings suggest that the system might be improved by providing the therapist with automatic flying scenarios.