Brain death, philosophical anthropology, and the body-mind problem
Published in: S. Shôji, A. Tamaoka. (ed.): Proceedings of [sic] International Congress on Ethical Issues in Brain Death and Organ Transplantation, Tsukuba, Nov. 1-2, 2003. Tsukuba 2004, pp. 24-36.
In the 'classical' literature in favour of the normative concept of brain death (i.e. brain death as an ethically and... more In the 'classical' literature in favour of the normative concept of brain death (i.e. brain death as an ethically and legally valid criterion for the death of human beings), references to modern philosophical anthropology and body-mind-theory are conspicuously absent. Given the fact, evidenced by this very literature itself, that the normative concept of brain death touches directly on our understanding of what it means to be human, this absence of philosophical theory is peculiar at least. In my presentation, I give an evaluation of the concept of brain death in the light of 20th century discussions on philosophical anthropology and body-mind theory, with a focus on 'rationalist' Continental philosophers like E. Cassirer and H. Plessner. The normative concept of brain death comes in two forms. One assumes that the death of the brain signifies the end of organic life. This notion will be discussed in terms of Plessner's theory of the organism as a positional entity. It will be argued that singling out dysfunction or destruction of the brain is not a correct way of asserting death. A second version of the brain death concept takes brain death to signify the end of personal, and hence, social life. Its analysis requires a theory of the body that differentiates and integrates its biological, personal, and social dimension. Such a theory will be briefly sketched out with reference to Cassirer's Philosophy of Symbolic Forms. The notion of brain death as 'death of the person' will be analysed accordingly. It will be shown that, and why, the life of a person is coextensive with the perceptible life of the body.
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Seen by:The Argument from Transfer
Final version published in Bioethics 1996, 10 (1): 27-42.
Utilitarian arguments on bioethical issues regarding human reproduction typically start with the view that it is... more
Utilitarian arguments on bioethical issues regarding human reproduction typically start with the view that it is wrong, other things being equal, not to procreate when this would have resulted in an additional being with a life worth living. The paper takes this view for granted and examines the common utilitarian claim that overpopulation and destitution in the world mean that, in practice, this obligation to procreate, other things being equal, often turns into a (categorical) obligation not to procreate. A version of this argument is defended - a version called the argument from transfer - according to which, rather than having additional children and care for them in order to make them happy, many people in the West ought to abstain from procreation and take care of destitute children already existing. The reasoning leading up to this conclusion raises some philosophical questions, seldom discussed in connection with bioethics, which indicate that the argument from transfer, although supporting the claim above, cannot neutralise the obligation to create more happy people as easily as assumed by utilitarians. It is argued that the argument from transfer may place many people facing the choice of procreation in a peculiar moral dilemma.
Fine vita: vecchi e nuovi paradigmi a confronto
published in Rivista critica del diritto privato, n. 1/2010
SOMMARIO: 1. Il caso Englaro e la breccia di Porta Pia. – 2. Paradigma ippocratico e paradigma ‘bioetico’. – 3.... more SOMMARIO: 1. Il caso Englaro e la breccia di Porta Pia. – 2. Paradigma ippocratico e paradigma ‘bioetico’. – 3. Asimmetrie ed opzioni giuridiche: dal codice deontologico medico alla sentenza n. 438/2008 della Corte costituzionale. – 3.1. Il d.d.l. 10-A licenziato al Senato il 26 marzo 2009 e la legge 15 marzo 2010, n. 38. – 3.2. La legge 16 marzo 2009 n. 46 del Lussemburgo e le Patientenverfügungen tedesche. – 4. Né sacro né profano: l’appello alla laicità.
Ricoeur’s “Petite éthique”: An Ethical Epistemological Perspective for Clinician–Bioethicists
For those who are not Springer suscribers: http://hdl.handle.net/1866/4970
The passage from a posture of clinician to that of clinician–bioethicist poses significant challenges for health... more The passage from a posture of clinician to that of clinician–bioethicist poses significant challenges for health professionals, most notably with regards to theoretical or epistemological views of complex ethical impasses encountered in clinical settings. Apprehending these situations from the only clinical perspective of the nurse or the doctor, for example, can be very unproductive to help solve this kind of situation and certainly poses great limits to the role of the clinician–bioethicist. Drawing on my own experience as a former nurse who, following graduate studies in bioethics has begun providing ethics consultation services, I argue that clinicians must undergo an epistemological transformation in order to become clinician–bioethicists. A source of inspiration or framework for would-be clinician–bioethicists is, I suggest, the “Petite éthique” developed by the contemporary French philosopher Paul Ricoeur. Specifically, clinician–bioethicists should develop specific core ethical competencies (in line with the conclusions of the American Society for Bioethics and Humanities (Core competencies for health care ethics consultation, 1998); namely: savoir or knowing, savoir faire or knowing how to do, and savoir être or knowing how to be.
Bioética fundamental
Livro publicado em 2002, pela Tomo Editorial (Porto Alegre, RS).
Este é um livro de reflexões filosóficas sobre as relações entre a ética médica clássica e a Bioética. Para isso,... more Este é um livro de reflexões filosóficas sobre as relações entre a ética médica clássica e a Bioética. Para isso, contribui a dupla formação do seu autor: medicina e filosofia. Assim, questões complexas, que tratam de situações-limite envolvendo vida e morte, como eutanásia, aborto, clonagem, transplantes de órgãos, sofrimento, são aqui abordadas. "Trata-se de uma proposta modesta: o leitor não encontrará neste livro nenhum grande sistema de princípios filosóficos que asseguraria um critério de solução para todos os casos. O realismo em ética consiste justamente em renunciar a essa espécie de garantia ilusória...", comenta Paulo Faria no prefácio a Bioética Fundamental.
Bases bioéticas para la estructuración de un programa de cuidados paliativos neonatales (tesis de grado)
by Irma Alejandra Coronado Zarco
Análisis con perspectiva bioética para considerar en la elaboración de un programa de cuidados paliativos en recién... more Análisis con perspectiva bioética para considerar en la elaboración de un programa de cuidados paliativos en recién nacidos y/o neonatos.
Brechas del humanismo en la atención médica perinatal
by Irma Alejandra Coronado Zarco
Brief analysis about current challenges in perinatal medicine. Brief analysis about current challenges in perinatal medicine.
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Seen by:Reporting on End-of-Life Decision-Making - Academic Meets Activists
Bioethics Editorial 2012; 26(2): ii-iii.
Well-Being and Time
Originally published in the Pacific Philosophical Quarterly (1991). Reprinted in The Possibility of Practical Reason, online in the SPO Monograph Series.
The goodness of a life is not a function of the goodness of the moments within that life. The goodness of a life is not a function of the goodness of the moments within that life.
So It Goes
published online as The Amherst Lecture in Philosophy 1 (2006)
The passage of time is an illusion The passage of time is an illusion
Against the Right to Die
Revised version of a paper originally published in the Journal of Medicine and Philosophy (1992)
Why a "right to die" could be a coercive option. Why a "right to die" could be a coercive option.
Dying
To appear in Think magazine
Why I don't want to die in my sleep. Why I don't want to die in my sleep.
In Search of a Philosophy of Life in Contemporary Society: An Introduction
In Darryl R.J. Macer and Souria Saad-Zoy (eds.), Asia-Arab Philosophical Dialogues on Globalization, Democracy and Human Rights, UNESCO Bangkok, (2010), pp.77-79.
In this paper I am going to talk about the “philosophy of life” project, which my colleagues and I have attempted over... more
In this paper I am going to talk about the “philosophy of life” project, which my colleagues and I have attempted over the last few years at our college. I believe research into the philosophy of life should contribute much to our discussion about many issues, such as democracy and war and peace in contemporary society. (......) In English, the words “philosophy of life” might sound like a personal philosophical view of one’s own life. However, we want to redefine it as an academic research field that covers:
1) Cross-cultural, comparative, historical research on philosophies of life, death, and nature,
2) Philosophical investigations on contemporary problems surrounding human & non-human life, and
3) Theoretical discussions of “life” and “philosophy of life” itself.
Can there be a Disability Studies Theory of 'End-of-Life Autonomy'?
Published in "Disability Studies Quarterly," Vol. 31, No. 4 (Fall 2011)
Winner of the Irving K. Zola Prize for Emerging Scholars in Disability Studies
Available online from "Disability Studies Quarterly": http://dsq-sds.org/article/view/1704/1754
In this article, I examine the possibility of a disability studies theory of "end-of-life autonomy." I... more In this article, I examine the possibility of a disability studies theory of "end-of-life autonomy." I define "end-of-life autonomy" as an individual's legally protected and medically enacted decision to die in response to a serious incurable medical condition. Disability studies scholars criticize such autonomy when it is exercised by persons with disabilities, but are divided on its application to the terminally ill. But the problem with end-of-life autonomy is not determining the correct population to which it applies; it is the ableism underlying the concept of "autonomy" itself. I redefine "autonomy" as a relational process of self-development that is oriented toward a greater recognition of dependence. This rethinking can make the ADA more responsive to terminally ill individuals, and helps lay the foundation for a disability studies theory of end-of-life autonomy.
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Seen by:To cure e to care in situazioni di fine vita: la proporzionalità e le cure palliative
Persona y Bioetica,(universdad de la Sabana, Colombia), 32, 2009, pp. 9-19
An effort to address the bioethical issues inherent in the process of dying requires a focus on the proportional... more An effort to address the bioethical issues inherent in the process of dying requires a focus on the proportional aspect of treatment. Failing to bear in mind the intrinsic limit to the art of medicine can result in dual and contradictory behavior: artifi cial support therapy on the one hand and therapeutic abandonment on the other. In real situations, the inability to recognize the limits of the power of medicine is, in one way or another, equivalent to not accepting death, to denying its inevitable role or to evading its anthropological and existential complexity. Moreover, denying that limit can lead to a possible confl ict between the physician and the patient, resulting in medicine that is defensive and contractual in nature. The proportionality in question is a criterion and, as such, it demands a particular assessment of the situation, without rigid and dogmatic codifi cation. However, the reluctance that exists at the social level or within the medical scientifi c community to accept suspension of treatment when it is shown to be disproportionate is born of the conceptual confusion between unlawful death and permitting death; that is, between omission and suspension. The difference between these two acts disappears only if the weight of the assessment is shifted to the intention or the consequences, the oneness of which would unite the moral equivalent of the acts. The article also shows the relationship between treatment and quality of life and the important fi eld of palliative care.
Language and Reality at the End of Life
In need to find adequate answers to the changing reality that is very much influenced by the advance of technology,... more In need to find adequate answers to the changing reality that is very much influenced by the advance of technology, people in the medical profession have developed and adopted an array of concepts and terms that brought new contents into the profession. ‘Dignity,’ ‘vegetative state,’ ‘futility,’ ‘double effect,’ and ‘brain death’ became indispensable instruments in the medical setting. In the following discussion, attention is focused on terminology. Believing in phenomenology, the assumption is that we should closely reflect on the words we use in all spheres of life, especially in those that concern life and death. This paper calls to open a sincere discussion about these terms and concepts. The thesis put forward is that the language in the medical setting serves primarily the physicians, at times at the expense of the patients’ best interests. The concepts adopted from other spheres as well as the concepts that were developed during the last decades generate an unhealthy atmosphere for patients. This atmosphere might lead to undesirable actions at the patients’ end-of-life.
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Seen by:AN OUTSIDER’S VIEW OF THE DUTCH EUTHANASIA POLICY AND PRACTICE
One of my most important articles
This essay provides a critical analysis of the Dutch euthanasia policy and practice. The research benefited from... more This essay provides a critical analysis of the Dutch euthanasia policy and practice. The research benefited from twenty eight interviews conducted in the Netherlands during the summer of 1999 with some of the leading figures who dictate the decision making process and take an active part in the debates. The discussion begins with a review of the two major Dutch reports on euthanasia and the conflicting views and interpretations offered by the literature. Next, I provide some data about the interviews, and then analysis indicating that the Dutch Guidelines on the policy and practice of euthanasia do not provide ample mechanisms against abuse. It is argued that the Dutch Guidelines are insufficient, do not provide adequate control over the practice of euthanasia, and that the entire policy should be revised and made more coherent and more comprehensive.
The Oregon Death With Dignity Act: Review and Proposals for Improvement
This article is based on an excellent paper written by my UCLA School of Law student Monica Hartman. Together we developed her paper to a full-fledge article.
Proponents of physician-assisted-suicide (PAS) have been trying for over a decade to legalize some type of PAS at the... more
Proponents of physician-assisted-suicide (PAS) have been trying for over a decade to legalize some type of PAS at the state level. They first attempted to use the traditional state legislative process. Although they managed to get some bills introduced and considered, none of them were approved. Consequently, in 1991 PAS proponents tried a new method, going directly to voters in Washington through the state’s voter initiative processes. When the measure was defeated in Washington, the legalization movement moved to California in 1992, where a measure again was defeated. The movement next moved to Oregon which houses the national headquarters of the Hemlock Society and is the home of Derek Humphry, a prominent right-to-die activist. The politically independent sentiments of many Oregonians, combined with the state’s history of progressive initiatives and health reforms, were instrumental in the passing of the Death With Dignity Act. Furthermore, Oregon has progressive advance directive laws and a long history of citizens using the initiative power as an instrument of legal and social change. Regarding citizens’ defiance toward organized religion and external political pressures, John Pridnoff, Executive Director of the Hemlock Society in Eugene, Oregon, said, “Oregonians tend to be more open-minded to a wide variety of opinions.”
Oregon also has a more conducive atmosphere for the passage of physician-assisted suicide because of the main characteristics of its population. About 90% of Oregonians are white and research has shown that whites are more likely than minorities (particularly African-Americans and Hispanics) to support physician-assisted suicide. In addition, Oregon is a relatively secular state where religious sentiments are not strong. That factor allows Oregonians to espouse moral views that do not necessarily coincide with religious norms. Chet Orloff, Director of the Oregon Historical Society, explained, “This measure is in keeping with Oregon. Throughout history Oregon seems to be out there ahead of other states in testing things.”
Interestingly, in order to gain the support of most Oregonians, the activists of the right-to-die campaign distanced themselves from Derek Humphry and the Hemlock Society. The initiators of Measure 16 saw Humphry as a political liability, fearing his controversial, fringe views might scare away voters worried that the measure was the beginning of a radical campaign to help people kill themselves. Spokeswoman Barbara Coombs Lee explained that Humphry always criticized the bill for being too moderate. Measure 16 was not designed to satisfy “the fringe element on either side of this issue, not Derek Humphry and not the archbishop. It was designed to find the common ground with a moderate, rational and safe solution to a problem facing Oregonians.” At the same time, the campaign had quietly used Humphry’s name to raise money across the country from right-to-die faithful. Humphry himself was very active in raising money for the campaign and contributed a large sum of money.
In November 1994, the citizens of Oregon approved Ballot Measure 16—also called the Oregon Death With Dignity Act (hereinafter “the Oregon Act,” or “the Act”), making Oregon the first and only jurisdiction in the United States to legalize PAS. The Act allows Oregon residents who are suffering from a terminal disease to receive prescriptions for self-administered lethal medications from their physicians. The term “terminal disease” is defined as “an incurable and irreversible disease that has been medically confirmed and will, within reasonable medical judgment, produce death within six (6) months.” It does not permit euthanasia (good death), in which a physician or other person directly administers a medication to a patient in order to end his or her life. Implementation of the Act was barred for several years by a constitutional challenge. Passage of the Act in November 1997, for the second time, not only legalized PAS in Oregon but also placed Oregon at the center of a national debate regarding PAS.
The Oregon Death With Dignity Act requires that the Oregon Health Division (OHD) monitor compliance with the law, collect information about the patients and physicians who participate in legal physician-assisted suicide, and publish an annual statistical report. This Article discusses the history of the Act from its passage in 1994 to the present, evaluates the strengths and weaknesses of the Act, and analyzes the Oregon Health Division’s reports on the consequences of the Act. It is acknowledged that the Act contains significant documentation and reporting requirements for every step of the procedure. These provisions are designed to ensure that the patient is making a voluntary and informed decision. The provisions help state agencies to monitor physicians’ compliance with the Act. This, in turn, helps safeguard patients’ interests and protects against the risk of involuntary euthanasia.
While the Act includes a number of safeguards that are intended to protect patients’ interests and guard against the abuses that have occurred in the Netherlands, there are still some flaws beyond the aforementioned weaknesses that do not necessarily advance the purpose of the Act, which is to give a dying patient the right to request lethal medication to end his or her life in a humane and dignified way. This Article proposes several improvements to the Act, including modification of the Act to contain self-administered lethal injections in situations where oral medications cannot be taken, additional reporting by pharmacists, mandatory psychiatric consultations for patients considering physician-assisted suicide, and enhanced control mechanisms. The meticulous set of guidelines will improve the working of the Act and make it less susceptible to abuse.
The reasoning behind the Act recognizes that a person may face grave difficulties at the end of his or her life. The general argument of death-with-dignity advocates focuses on a special set of circumstances where (1) a person has a terminal disease, (2) is capable and (3) has made the request to end his or her life voluntarily. According to death-with-dignity advocates, a person in this situation should have the autonomy to make the decision to end his or her life and to be able to do so in the most humane manner. This does not negate the principle that a person’s life is valuable at all times. Instead, the viewpoint is that although a person’s life is always valuable, a patient’s desire to control his or her manner of death and to die a more painless and/or dignified death should be given precedence over the value of his or her life. As said, the Oregon Act specifies that the time period for this judgment is after a reasonable medical prognosis has given the patient only six more months to live. In order to protect the individual’s freedom to act, two rights are recognized: the right to autonomy and the right to choice in end of life issues. Both of these rights were cited by family members as extremely important reasons why patients chose PAS in its second year of effect in Oregon.
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